Posted on 10:03 pm, Friday, February 27, 2009. Tags: opinion, rare disease day
Hawaii has a beautiful tradition of cherishing our keiki, so it is disappointing that our state officials have chosen not to join 29 other states in declaring February 28, 2009, Rare Disease Day in our state. Â As part of a global effort, the National Organization for Rare Disorders (NORD) coordinated a campaign to encourage governors […]
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Posted in Opinions
Posted on 4:04 pm, Thursday, February 26, 2009. Tags: rare disease day
PRESS RELEASEÂ Â Â The second annual Rare Disease Day will be marked Saturday, Feb. 28. Â On and around this date, hundreds of patient groups and their partners are organizing a variety of awareness-raising activities to draw attention to rare diseases and the millions of people suffering from them. Â The international Rare Disease Day campaign […]
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Posted in Health