Tag Archive | "rare disease day"

Declaring February 28, 2009 Rare Disease Day in Hawaii

Declaring February 28, 2009 Rare Disease Day in Hawaii

Hawaii has a beautiful tradition of cherishing our keiki, so it is disappointing that our state officials have chosen not to join 29 other states in declaring February 28, 2009, Rare Disease Day in our state.  As part of a global effort, the National Organization for Rare Disorders (NORD) coordinated a campaign to encourage governors […]

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Rare Disease Day marked Feb. 28

PRESS RELEASE    The second annual Rare Disease Day will be marked Saturday, Feb. 28.   On and around this date, hundreds of patient groups and their partners are organizing a variety of awareness-raising activities to draw attention to rare diseases and the millions of people suffering from them.   The international Rare Disease Day campaign […]

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